Tuesday, December 14, 2010
See, I have a fear of death that is almost pathological in nature.
Physical health for a 60 year old guy: Not bad, I reckon. Still walking and so far no symptoms of anything serious.
Mental health: Well, that's a whole 'nother story, innit?
Been doing my best to keep perspective on that, though at times I've caught myself doing and saying goofy shit, hallucinated at least once and lord at the times I've forgotten stuff which was said to me just minutes ago!
My "saving grace" this year has been the ride for the animals (gave me something to do) and my continued friendship with BillDL and Becks. I tell you, there were times this past year when I could have gone completely batshit had it not been for those two.
Speaking of the animals and their welfare: The "war" between the authorities and animal welfare advocates/activists continues and instead of getting better, it's getting worse. Accusations are flying right and left on both sides, and I have to say it is very disheartening to realize that my 800 miles on the bike were for naught.
I had hoped to further the cause of "No Kill America", bring together the two factions and let them sit down and air their differences and come to some kind of "cease fire", but alas, it was not to be. Local internet "bulletin" boards and newspapers are full of vitriol and only the animals are suffering because of it.
For the sake of my sanity, I have decided no longer to ally myself with any organization, but will take my concern and love for the unwanted animals to the written word until such time as I see the two (maybe 3 - the No Kill folks seem to be going after the Humane Societies as well as the animal control authorities now!) sides lay down their "weapons" and find some common ground. The differences need to be aired in public meetings and not in the local media or internet. I have long advocated "town hall meetings", but they have been few and far between.
As I stated elsewhere, I believe at this time it is best that animal welfare and care be a personal goal by those of us who love them. One does not need to "belong" to a certain organization to promote this! Set your own examples, by adopting and then spaying/neutering your new friend.
Long story short: I am no longer willing to "take sides".
So what else?
As already mentioned, I plan to get at least one more marathon under my belt, so the training continues for next November when I'll be dedicating every mile to Alzheimer's research.
The disability hearing is coming up in February, and the "legal eagles" (I hope) are getting their "ducks in a row". I myself have been filling out paperwork, asking for medical records (this is stuff I think they should be doing, btw) and just generally "prepping" myself by writing down everything that's going on with me as it relates to my dementia.
No resolutions. I'm all "resolved out".
My friendship with my 2 "geographically challenged" friends will continue, of course, as will jotting down bits and pieces of my life which I jokingly refer to as my "memoirs".
At one time I flirted with flying lessons and I wish I could get back to skydiving, but who wants to fly with a pilot who may forget what this or that gauge is for, and D doesn't think I'll remember to pull the cord once I jump out of that "perfectly good airplane"!
That's all I can think of to write except to thank you for taking the time to read my drivel from time to time, for clicking on the "click to feed" buttons and for suffering through the music I include from time to time!
Happy holidays to you and your loved ones und einen guten Rutsch ins neues Jahr!
Tuesday, November 16, 2010
As I mentioned in a previous entry, the last one I ran I finished just 12 minutes before it ended at 4 hours and 48 minutes. Even though I'm 11 years older, my goal this time will be to finish at 4 hours and 30 minutes or under.
I can do this and I will do this because I think it is important to show we still are your friends, your family and your neighbors and we don't need you to feel sorry for us or "write us off". We want you to stand by us and help us obtain the funding needed to research and cure this terrible disease.
My counsellor Suzette has been notified of my decision, and in the coming months you will see information on planning and how you may participate if you wish.
My mind is weak (ening), but my legs are strong. Please give me your moral support, okay?
Thanks and please don't forget our 4 footed friends. We're heading into the cold months, and although their fur will protect them, we need to help them with hunger and companionship, so please click to feed and rescue when you can!
Saturday, November 13, 2010
So I guess between now and then, we'll be getting all my documentation together (Dr's records, etc) and generally just preparing (which for me, means reading everything I can get my hands on, on how such a thing is conducted.
If you've been following the blog, you may have heard me mention the bicycle ride we completed in September, called C2CR2C and you may have followed us as we prepared and rode the highways from Texas to Georgia.
If you did, then you may have gotten to know "Team C2CR2C", consisting of myself, my wife Dondra, BillDL of Scotland, his friend Becky of California, and our friend Marty Neese, who was the co-manager of the ride and whose duties included, driving the support van, navigating, repairing the bike and giving me the moral support I needed.
In the last post, I wrote that Marty lost his 28 year old daughter Brandie to cancer on Nov 7th. Since that last post, BillDL has written a very moving tribute to Marty and Brandy. Since I felt that post/mention was kinda short and the website added as an edit, I am repeating it now for you to take a look and keep our friend Marty in your thoughts as this is the second tragedy he has had to endure, having lost his 10 year old son Josh to muscular dystrophy several years ago.
Please take a look and if you like, sign the guest book using the link BillDL has provided.
We love you, Marty and thank you for your dedication not only to our ride, but to your children as well.
Bill, Dondra, BillDL and Becky
Dondra and I were saddened when one of my counsellors, Danelle, informed us of the passing of Mr. Jim Patterson, an Alzheimer's victim and very good friend to all who knew him. Jim and I belong to a support group called "Forget Me Not" and every month on a Wednesday we all meet at various restaurants in the metro Atlanta area for lunch that Suzette, Danelle and Kathy arange for us. Jim and his kind, friendly manner will be missed by all of us, and Dondra and I add our condolences to his family and friends.
Also this week one of the C2CR2C ("Carrollton to Carrollton Ride to Care") teammates, Marty Neese, lost his 28 year old daughter Brandie to cancer. This is the second child he has lost. His 10 year old son Joshua died of muscular dystrophy several years ago.
No child should precede his or her parent in death.
Marty was an essential part of the team and we could not have succeeded without him. Although she was very ill, she insisted that her dad go on the ride for her. She leaves behind her son Jacob and husband Brandon.
Please keep both our friends in your thoughts.
EDITED TO ADD: A moving tribute by BillDL to our friend Marty's daughter may be seen at www.c2cr2c.com. Thanks, B~
Wednesday, November 3, 2010
Since the ride is done, and since I don't have plans to do another, I need something to keep me busy and in "planning" mode, so I've started training in addition to cycling (working all sets of leg muscles).
As you might guess, I'll be starting off with "baby steps", i.e. walking and working my way up to running 5 and 10k's and adding mileage from there.
If you're into walking and want to join me virtually, I recommend the cd's "60's walking (or 70's, 8's, 90's etc.) by a company called Workout Music (not affiliated).
The pace begins at 3.0 mph and the music is geared to BPM (beats per minute) so that every time your foot hits the ground, you're walking in time to the music. The next level is 3.2, which you should do when you feel comfortable at 3.0 and can carry on a conversation without gasping for breath. Personally, I find I train better with music than without, and I'm currently at 4.1. The next one is called "Classical Symphoney Power Walking" and goes to 4.6 in 2 levels. All workouts are 30 minutes and feature 2 different speeds. My goal is the Marine Corps Cadence runs, which are a good race pace.
A link to the workout music is in the title line of this post and you can hear a 2 minute sample here: http://www.workoutmusicvideo.com/walkr6w.html
In other news, I'm still active in animal welfare advocacy and am currently working on getting the Paulding County Humane Society re-motivated, since they've been basically kicked out of volunteering at the local animal "shelter", and have all laid down and are licking their wounds (so to speak).
They need to re-organize and form committees to discuss building their own free-standing facility, but I think they feel more comfortable writing about how "helpless" they all feel and how they're "in tears" because so many animals are being killed. (Not "euthanized" - killed.) I want to either, 1. shame them or 2. anger them (even if it's at me). I am giving them all sorts of ideas, but so far - nothing. If you care to read about what's going on, here's a link to their forum: http://paulding.com/forum/index.php?/forum/99-four-legged-friendzy/ . My nickname there is Christopher Robin.
Yesterday, (Tuesday) D and I worked at the local precinct for voting, which also happens to be where we go to church (well, where D goes to church, I only go when she bitches at me for NOT going). Counting getting up at 4:30 am and working in total to 8:30 pm (polls close at 7, but it takes another hour and a half to take everything down), I wasn't good for much when we got home and went straight to bed.
Okay, that gets y'all up to date on the "German Boy". Write me something sometime, please. Don't make me feel like I'm talking to myself. I'd kinda like this to be my "diary" of sorts.
A little "joggin' music":
Don't forget to click to feed!
Monday, October 25, 2010
I haven't written anything because basically, I had nothing to say, plus I didn't feel like it.
I have to admit to a certain amout of "post-ride depression" now that my bicycle ride for the animals is finished and there's nothing to plan, nothing to train for and I haven't been on the bike since I got back from Texas.
In the last entry I told you about my new doctor who doubled up on my Welbutrin and recommended we try ECT if that didn't work.
Well, Becks suggested I read up on the electro-convulsive therapy and its benefits and risks, so I went to the college library and there, sitting in the "New Arrivals" rack was the book, "Doctors of Deception: What They Don't Want You to Know About Shock Treatment" by Linda Andre (herself a former ECT patient).
To put it bluntly, what I read scared the hell out of me and it's a good thing the double dose of Welbutrin is working, because no way am I going to let anyone anesthetize me and shock my brain to get rid of my depression.
You know what the most important two things I got from reading her book?
1. No one knows why it works - it just does. There's no medical documentation at all why it's "effective" - just that it is.
2. It erases memories. Oh. My. God. I live my life on my memories and I have some very good ones - especially at this time of year (heading into the holidays). Why would I want a chunk (no matter how large) of what I remember taken away from me?
Okay, now what?
Well, I ain't doin' the ECT is one thing. But the other thing is that I have always been as fair a person as I can be, so I'm going to read the "other side's" version of ECT and why it's beneficial, and I'll let y'all know what I found out.
But how'm I doing?
Oh, okay I guess. D has noticed some improvement in my demeanor, i.e., I don't let little things (like dropping the razor, bumping into things and other general clumsiness) upset me anymore. I'm more focused and pay attention to things like our finances, washing the clothes and other general household stuff. I have my own checking account (my small pension goes into it) and I watch it like a hawk, so that's a good thing, but......
.......we've both noticed this: I will have an idea that I want to do something such as check e-mail on the computer and by the time I get to it, I don't want to do it anymore. Playing my guitars - same thing. I'll get one out of its case and then put it right back. Don't know exactly how this has happened, but it has.
Almost forgot: Sunday (yesterday) I went to an organ recital at UWG (University of West Georgia, my alma mater) and thoroughly enjoyed myself. There are a few more free concerts coming up the next few days and I'd like to go to those as well. (D doesn't like that kinda stuff, so I go alone).
Today, I started walk-jogging, and I plan to alternate this with cycling, so I'll get out in the fresh air more - something I have not been doing much of since the end of the ride.
Okay. I guess that gets us up to date. Thanks for reading and please remember to click the icon below to feed the animals and ask your friends to do the same.
Saturday, September 25, 2010
But that's not what this blog is about: I have a new doctor. He is a geriatric psychiatrist and my first appointment was on the 20th of this month. The and I have a great rapport - much better than the last one and he made some changes in my psychotropic meds. I am very grateful to my friend and counsellor Suzette for setting this up for me.
So what did he do and say?
Well first he asked about my symptoms, and they're still short-term memory loss related to my depression, so he increased my Welbutrin from 150 to 300 mg a day. I am also still on the Lamiktal - 150 mg one per day.
One thing D reminded me of is about a month ago I had a very weird (I suppose you'd call it hallucinatory) episode: I was approaching D's desk where she was sitting at her computer, looked up and saw what I thought was a cat sitting over her on a shelf, and said "I hope this cat is just here temporarily" (we already have one cat - Bert).
She said, "Huh?", and when I looked again - closer - I saw it was a picture of a cat on a calendar. Very embarrassing and I told my new doc about it. He had no comment, but asked me if I was after getting SSDI for my illness and I answered "yes".
Then he said something I had never heard from another doc. He said: "Well, we have to show them (SSDI) that we're trying and have tried everything to get you better or at least slow down or arrest your disease, so I'm going to up your meds and there's something else I want you to consider: ECT (electro-shock therapy). it doesn't have the stigma it once did, and is done with you under general anesthesia - in the beginning three times a week."
There followed a Q&A about the procedure and we decided I would try the upped dose of Welbutrin for three weeks and call him and tell him if I were better, so that's what we will do.
I contacted my lawyers and informed them of the new doc and they took the information and will get in touch with him.
So that's it for this entry. I know that ECT is a very controversial procedure and the doc told me they did 20 just that morning. I have mixed emotions and will faithfully follow the Welbutrin regimen for now.
Please click to feed the animals - thanks.
Sunday, September 19, 2010
Thursday, August 26, 2010
A click on the title line will take you to the website crafted with loving care by my friends BillDL of Scotland and Becks from California.
Someone once said that one of the most precious gifts one person can give another is time, and the time my 2 friends have devoted to my ride has been precious indeed. Tanks you two,once again.
Whenever I tell someone the distance I will cover each day, their eyes get big, but when you think about it, that 75 miles will go quickly enough, because when I'm on my bicycle, I'm in a whole different world with no intrusions on my thoughts (unless one considers the cars and 18 wheelers which come blowing by me!).
Yes, of course those hills are sometimes tough to conquer, but there's always the downhill part, which I look forward to the most.
Not a lot to say in this entry, so I'll share a couple of nice songs with you. One you'll probably never have heard of and the other one - well - depends on how old you are!
I subscribe to Mr. Ferguson's music. He goes by "The bard of Cornwall", This is one of my favorite and most thought-provoking Beatles' tunes.....
Another Mom and Dad song - in the middle of it they did the Rumba. The old man sure could dance:
Before I close, allow me to remind you of the multi-media page of the C2C site. This is where you can go, click and hear my voice describing ride as it is happening, though not in "real-time". You may want to try it out with the samples provided, just so you'll know which platform to use.
Sunday, August 22, 2010
Me who used to be in radio, played in a hundred rock groups, acted onstage and was Mr. Cool and "Swayve" with his patients....... has stage fright.
As preparations slowly wind down and the days of my ride begin to loom closer, the publicity for C2C R2C is beginning to intensify and in a little better than 8 hours I'll be interviewed about why I'm going to ride my bicycle 800 miles in the blazing hot sun.
The program is called "Animal Wise Radio" (http://www.animalwiseradio.com/) and concerns itself with animal welfare and "No Kill Nation" as well as spay, neuter and adopt.
It's on from 2:15pm till 2:30 pm EDT at the above link if you'd like to listen in at the above link. It's also going to be archived and the website is very easily navigated, so finding the "archive" button won't be very hard at all, as it is right on the front page.
I'd also appreciate your visiting the C2C R2C website at http://www.c2cr2c.com/ . Take a look at BillDL's web-wizardry (he's constantly working and improving!) and please sign my guestbook if you have time.
Tuesday, August 10, 2010
I do it so much that I have begun compensating for this as well.
For instance, one might hear me ask, "When, who, what, where....... did you say (example) is, was, etc."
Well, she may have said it, or I may have imagined it, but either way, it avoids the "don't you remember" phrase.
In other news:
Here we are less than a month until the Ride To Care (www.c2cr2c.com) and we are in last minute aggravation stage, meaning that one of two of our sponsors may not come through for us.
This means, of course, a lot of time spend on the phone or online by yours truly, many sleepless nights and hardly any time to train decently, but we'll make it. I have two very good friends who are there for me come rain or shine: BillDL and Becks and they won't let me get "down in the dumps".
So, back to remembering. Do you have trouble remembering stuff? do you have trouble remembering stuff 5-6 times a day, and do you sometimes not want to talk to anyone at all for fear of being looked at like you're from Mars because you should already know what you're asking about?
Strangely enough, (or not strangely at all) I* don't have any trouble remembering anniversaries.
Today would have been my Mom's 82nd birthday, for example and I have another important anniversary coming up the 18th of this month.
Funny how the brain works, isn't it?
In keeping with the "remembrance" theme.......
And just so you don't forget me and the Ride to Care......
That's just BillDL having a little fun with the pics shot earlier this month! To see the originals, go to the website (www.c2cr2c.com) and please don't forget to sign the guestbook! It would mean a lot to me!
Also remember to click to feed......
Saturday, August 7, 2010
Just checkin' in to let you know all is well - now.
Dondra had a very close call with death a couple of weeks ago when one of her intestines perforated and fluid leaked into her abdomen.
I took her to ER and they quickly shipped her to Altanta Medical Center where 5 years ago she'd had a gastric bypass.
What happened was she developed gout and her primary care physician put her on an inflammatory medication - a huge no-no for anyone who's had that kind of surgery.
Luckily the surgeon who did the bypass was on that day and, after making 5 laprascopic incisions, managed to get the intestine repaired.
Wednesday I took her back to her doc and he removed the drain and she continues to recuperate and promises to be ready to navigate the C2C ride next month. Meantime, guess who's "Mr. Mom"?
Yup, the time is getting closer and if you haven't already, please go to the website (http://www.c2cr2c.com/) and write something in the guestbook to cheer me on - I'd appreciate it. You can also keep up with me on the ride itself by choosing the multi-media page and clicking on the second icon and then clicking on whatever you use to hear stuff on your computer. You will hear me talking to you and reporting how the ride is going/went on anty particular day - maybe even from atop the bicycle!
Here's one of the rides "signature tunes". It's the theme from the tv show "King of The Hill". Enjoy and remember to clock to feed the critters!
Friday, July 9, 2010
No that isn't a typo up there.
I got a letter from my lawyers (Binder&Binder) this week and that's what it said.
I googled it, and it appears there's such a backlog, that's the average time to get to anyone's case from the time it's requested.
He (Charles Binder or one of his lackeys) did say that there's the remote possibility of a video hearing with a judge who may not be busy doing something else, but for me not to count on it.
Oh well, at least now I don't have to worry that they'll schedule the hearing to interfere with the ride.
No, you're right: It IS totally unrelated to the subject!
Don't forget to feed the critters!
Monday, June 14, 2010
...... but NOT gone completely, okay?
I got a "pep talk" from "Coach Becks" a few days ago ....
.... and she told me that if I'm going to cross that finish line I had better get crackin'!
I agree. I've been spending way too much time on organization, sponsorship and just plain WORRY, that it's affecting my training, and we can't have that happen.
So what I'm going to need to do is cut out all extraneous things in my life and concentrate SOLELY on the ride. It's GOT to be that way, or else it's going to fail and as the saying goes, "Failure is NOT an option!"
There's another saying/motto which goes like this:
"We will do what we say we will do
We won't commit to something we cannot do
Once we commit to it we WILL do it"
My friend BillDL is not only the co-administrator of this blog, he's been working daily on the c2cr2c website which you can visit (please do by clicking the blue subject line above or the link to the left), but he's been very active as the ride's publicist; what you read on the c2c website is what he has crafted from what he knows about me. He is the most articulate man I've never met. He also works a full-time job. I don't work a full-time job. I don't work at all.
I wrote the above to say that if this guy can spend so much time for someone who he's never met except on the web, who am I to give any less than my best for the animals whose lives we want to save?
So we're going to leave this blog site "open", not "suspended" as I stupidly did before. You can follow me and my ride on http://www.c2cr2c.com/, and I'll be back here when I can.
Thanks, love you guys!
Wednesday, June 9, 2010
See, it was Becky who, a few months back found me this clinic which treats patients who have no insurance and charges them a sliding scale fee (click on the subject line to take you to their site).
My new doc (a very nice "Doogie Howser" type who D says "looks like he belongs on a skateboard") did a very thorough examination with lots of blood work drawn, wrote scrips for all my meds (including the depression ones), and I was only charged 25% of what the whole thing would have cost me had I not been on a sliding scale!
He even did a prostate exam (with blood - not with the finger up the "poop-chute"!) and checked my vitamin D level (for the bones and arthritis).
All in all, a very thorough exam, a very nice doc and a sweet friend who found him for me.
Oh yeah, speaking of the "poop chute":
I mean, that is what he's singing, right - "Don't take it up the poop chute?" *wink*
A sweet friend whom I have never met, and who is VERY special to me - someone who would think so much of someone they've never laid eyes on, made sure I got some great medical care!
Thank you, Becky for being such an angel! I LOVE YA'!
Monday, June 7, 2010
But I still wear my t-shirt which reads "Jumps from perfectly good airplanes" and recently I got something in the mail from Kevin Burkart who's going to do 200 perfect jumps (click on the title to check out his site) in one day to benefit and call attention to Parkinson's (which his dad has, and which I also am getting).
SOMEBODY'S gonna be busy packing 'chutes!
Here's my newest rock group which I love (thanks, Johnny L.A., for the vid) AFTER Here Come The Mummies.
Please don't forget the fur-babies?
Wednesday, June 2, 2010
Anyone remember Rich Hall and his "sniglets" (words which should be in the dictionary, but aren't)?
Here's my all-time favorite:
Expresshole-n. A person who goes through the grocery store's 12-item express lane with 22 items.
Do you have a favorite? Let the rest of us know (hint: do a google search on "sniglets")!
My best friend I ain't never met, Johnny L.A. from The Straight Dope will every now and then send me a YouTube or other clip he thinks is appropriate for "The German Boy", and here's one more: (Y'all have read my references to me being a "happy boy" if so and so were to occur? Well, John found a song with just that title!)
Click on the title of this entry and please give it a few moments to start once you click on the arrow....
Good things still happening for C2CR2C! My Scots friend Bill is still at the helm of the website (take a look at www.c2cr2c.com) and we're having all kinds of wonderful friends and sponsors joining the ride! I'm not much on religion, but man! I swear someone's looking out for us and the four-footed ones!
Speaking of which (y'all know the drill, right?)
Thursday, May 27, 2010
You know, in the 17 years I worked at my hospital, not one Veteran's Holiday did my previous employer even acknowledge there were any veterans employed there. To my knowledge they still do not.
This needs to stop. We're in the process of fighting a war in two countries. Over 1,000 of our young have been killed so far, our veteran's benefit program is a shambles, hospitals badly need modernizing and renovating and there's no end in sight.
As you travel this Memorial Day weekend, and you see the flags out on the streets, highways and medians or as you display your own flags, please remember not only YOUR loved ones but those who may be standing on the side of the road or sitting on street corners holding up "Homeless, Need Work" signs.
When they gave of themselves, they didn't ask "What's in it for me?", they just did it, gave their all, and as the song goes, "Some GAVE All".
I think this is what may have driven them:
And not only humans can be veterans. We have military dogs serving in Iraq as we speak and one, Fluffy, was retired in 2003 with his handler under very special circumstances, and I urge you to read his story by clicking the title link above. It WILL move you, so be forewarned!
Fluffy, if he could, would remind you to feed his brother and sister 4-footers by clicking here
Tuesday, May 25, 2010
Lord knows what he expects to find in that poor slab of organ I call a brain, but here's what he said he found this time:
That first part kinda sounds like Jaimie Brockett singing about the USS Titanic, only a lot funnier, but the last part, I swear he made up. Or it came from a Python picture.
Sure didn't come from MY brain.
It's still on tunnels and donuts!
Thanks for the laughs when I need 'em the most.
CLICKEN SIE UND FEEDEN SIE! Danke!
Thursday, May 20, 2010
I am very appreciative of her and the GA chapter of the Alzheimer's Association for supporting me, and my ride is dedicated to them, Alzheimer patients and their caregivers as well as the four-footers.
Incidentally, D and I were finally able to attend this month's Forget Me Not luncheon (for Alzheimer's patients and their care givers) at South of La Paz Mexican restaurant in Atlanta and I'd like to thank my friend for making this possible. Really, Suzette's so sweet she makes ya wanna roll over and do all kinds of doggy tricks for her! I kid, of course, but I don't think I have ever met a more charismatic person in my life.
It was also a pleasure to meet and converse with Kathy Simpson who also works with the Georgia chapter. Kathy and I have e-mailed in the past and her job is to keep our politicians (and us) informed about this awful disease and the laws affecting it and ones proposed to help us find a cure. Thanks for laughing at my corny jokes, Kathy.
That's it for now. Have a great weekend coming up and please remember to click to feed!
Thursday, May 13, 2010
Got lots of stuff to do before the 2010 ride to care. I have my hands full getting fuel costs and accomodations for my van and my crew, so may I ask y'all to please link to our site at www.c2cr2c.com?
We not only need your pennies and dimes, I also need the moral support.
Please help the "German Boy" do this thing, if you can.
and here's your oldie and no dancing, clapping or foot stomping allowed! I mean it this time, dammit! :-)
Wednesday, May 12, 2010
Knew I had no insurance and allowed me to pay a very low fee for my visit. And wrote my scrips for Lasix, Allopurinal and Darvocet, which I use when I need it.
I asked him to please not order any bloodwork, because we cannot afford it, so he didn't.
I told him this was the last time I would see him, because I could not afford the visits, the labwork, nor the meds he prescribes: Azor being the most expensive.
I will run out of the Lamiktal at the end of next week, so I am trying to "wean" myself down right now.
The Wellbutrin will last another week and a half, but I have to see the shrink to get refills, but because the COBRA ran out, I owe him $140.00 instead of the usual co-pay of $30.00.
Yes my dear Becks, the cheap clinic is already in the works, as is my request to hurry up my SSDI and the meds I can get free or for very little money.
Sucks to be me, Ah reckon!
But PLEASE don't forget the 4-footers!
It's MUCH worse for them than it is for us!
And here's a little tune for clicking the above....... THANK YOU!
Friday, May 7, 2010
When I worked in the ER, if you had it, they wanted you to stay home. Period. No being a "hero", keep your ass at home.
For that reason (because the screen is hurting my eyes), I'm gonna keep it short and sweet this time, wish all you muthas (it's a joke, okay?) a very happy Mother's Day Sunday, and ask you, as I always do, not to forget the 4-footers, because they have Mommies too, right?
Also please support www.c2cr2c.com, my upcoming ride for the animals. I sure would appreciate it, and especially if you'd link to us, thanks!
And have we done my favorite commercial yet? If so, here's a "rerun":
And how about a jazz "blast from the past"? Turn it up a little....
Stinky McStinkface :)
Friday, April 30, 2010
As Becks wrote, please visit us, link to us and support us any way you can, thanks!
Remember also that there's a contact form there where you can write and ask us questions.
The animals, please? Thanks.
Stress relief here:
Tuesday, April 27, 2010
As for me, nothing much has changed except I'm spending a lot of time on the bicycle training for C2CR2C coming up in September. Our website can be accessed athttp://c2cr2c.giving.officelive.com and will give y'all a little of an idea what it's all about. This is a temporary website put together for us by my good friend Bill Dalziel who lives in Scotland. It's been heartening to have him contribute so much time and effort for someone he hasn't even met and for such a worthy cause. Bill DZL is also co-administrator of this blog, by the way.
Still nothing from SSDI and I'm going on the assumption that it will be a long time or even never before I get an answer that they've approved my disability.
It's also why I've started back working a little - not in an ER environment and not very often. This is basically for an agency which supplies respiratory therapists for hospitals who find themselves short-staffed.
Before you write back that working even a little is hurting my SSDI case, please don't. I've heard it all before - from friends, from my lawyers and other folks who already have SSDI. I'm just not going to sit idly by anymore and watch as my wife shoulders the financial burden for both of us.
Insurance is gone (I think I mentioned this before in another entry), but my friend Becks (whom I also have never met) found me a clinic that sees patients who don't have insurance for very little money. Of course there was the requisite paperwork to fill out as well as proof of income, taxes, expenses, etc., but that has now been completed and luckily I have enough meds to do me for another month so before they run out. I'll be making an appointment. Thanks for looking out for me, Becky.
As I wrote earlier, it's so great to have friends, even long distance, who care about me!
In other news, I recently attended a seminar regarding making all animal shelters in the USA "no kill" shelters - meaning no more euthanizations. Many shelters in America are already no kill, including the one in Carrollton TX where I'll be beginning my bicycle ride in September. If you have an interest in animals and their welfare, I urge you to visit www.nokilladvocacycenter.org and eductae yourself and others as to the philosophy and strategy on how this may be accomplished.
That's it for now from Carrollton, Georgia. Thanks for hanging in there with me and please don't forget to click to feed!
Wednesday, March 10, 2010
This blog is meant to be a dialogue, not an editorial.
Please don't forget to click to feed every day!
Thanks and see you sometime.
Tuesday, March 9, 2010
Click on the title for the latest Alzheimer's Disease figures so far and you'll see what I'm talking about.
Now the chances are, you know someone with this awful disease. The numbers are just too great, and in my opinion, they are overwhelming.
We appeal, we appeal and we appeal. We write letters to our congress persons, but what good does it do?
LOOK at the damn FIGURES and divide 'em out!
Do you see what I mean????
It ain't just one race! It's all races, Godammit!
So what are we going to do? Cry for the death of our loved ones who succumb to Alzheimer's?
SURE WE ARE! That's only right! We will mourn them! It isn't their fault!
But what else can we do????
WE CAN FIGHT!
Don't y'all think this shit has gone on long enough????
No more begging.
Let's go to demanding!
Think about what I wrote just now next time you lose someone close to you because of this dreadful disease, and ask yourself, "What could I have done?"
Let me leave you with this thought: Just where do you think the money to save our Alzheimer's patients is going?
Certainly not where it should!
WHY do you think Europe is so far ahead of us in meds to arrest (and maybe even cure AD?)
It's because even though the meds have been tested there and have made a difference, OUR FDA is dragging its feet while thousands die!
And why do you think that is, my friends?
I know: It's a repeat. So what? It still fits.
Thanks for thinking of the four-footed ones!
Friday, March 5, 2010
For the first time in months, I picked up my accoustic and played a few tunes and formed those all-important callouses. Now I just have to keep it up, so I don't have to form them all over again.
Worked on The Ride about 30 hours this week. On the phone, on the net gettin' them sponsors signed up.
Still looking for a C2C R2C web domain/site, but so many good things have been happening for us, I can't but believe that a website will be happening soon.
Been e-mailing back and forth with my friend Bill in Scotland (who, incidentally co-adminsters WTB? with me to keep me straight and not get goofy with the passwords and username as I did a few months back), and I'm really fortunate to have him as my "computer guru".
Matter of fact, Bill sent me the following picture.(Supposedly of me taking my latest documentary evidence to my local Social Security office):
So.... I wish y'all a great weekend - supposed to be nice and sunny here, if not warm - and I'll leave you with a little bit of "soul music": Here Come The Mummies. Enjoy, and let that dirty mind have its way!
Tuesday, March 2, 2010
So what is this guy's agenda????
He isn't running for re-election, yet at every turn, he blocks the extension of unemployment and COBRA insurance benefits for millions!
He speaks very cavalierly about missing a basketball game to be present to vote and then just as cavalierly dismisses those who could benefit most from his vote!
John Stewart of The Daily Show said it best when he suggested this guy should be paged to a phone to get him the hell out of the room, so the vote could commence and PASS!
So my question is: Is the senator mentally challenged or just a stubborn ass?
Or worse, a "cry-baby" thumbing his nose at his party-members as he leaves office?
"Naaa-Naa-Naa-Naa-Naaaa! Guess I showed you guys! Now I'm taking my toys and [Cartman]screw you guyyys, I'm going hoewmm![/Cartman]"
If he's mentally challenged, (and how would we know?), maybe we should reach out to him and invite him to visit www.alz.org and get to know us.
If it's it the other, we should still feel sorry for him and be glad he's leaving office, the poor dear.
Neither one of those issues should make a "hill of beans" to me, brothers and sisters. I don't get unemployment and my COBRA just ran out (which means the dementia meds will soon be gone).
But I DO care about my neighbor, and though I try to be apolitical here in this blog, this shit angers me.
Here's another guy who's pissed off.
Careful, this ain't Johnny Cash you're about to hear, but I'll bet you'll think of JR when you hear and watch this song......
Don't forget the animals!
Tuesday, February 16, 2010
A couple of weeks ago, Suzette and Becks and now a friend of mine from SDMB, Oakminster, have sent me this link, and I have not mentioned it here until now for a number of reasons.
Pretty much everyone who's been kind enough to send me this link has advised me to get in touch with my attorneys and tell them of it to see if they can expedite the approval of my SSDI.
As I have mentioned before, I am represented by Binder&Binder, and as y'all may know, they don't get paid until I get approved, and although I have been told by them that if Social Security approves me without their help, they'll gladly "drop out", I can't imagine them contacting SS on my behalf and asking them to give me this approval without them being more "involved" in the appeals process. (Read that as they want that 25% which they'll get off the top of any back pay SSDI gives me, and it isn't to their advantage if I get approved without their involvement).
There is also the fact that I am to have NO contact with Social Security on my own. That is stipulated in the contract and I have already screwed that up twice and pissed them off. That means if they call ME, I refer them to B&B. If they send me anything to fill out, I am to do so and then send it to B&B.
Can I fire B&B? Nope. Not unless I want to pay them for any work they've already done, which, of course I cannot afford.
Also keep in mind that I have dementia which is called "Alzheimer's-related", and I'm in every one of those 10 signs listed on the www.alz.org website. My shrink says I'm "impaired", which to me means I can no longer take care of my patients, so where does that leave me? Yes, I can still "reason", and fortunately my depression hasn't been so bad that I want to do away with myself (one of my friends from my radio days had a grandmother who, when she found out she had Alzheimer's, blew her brains out with a 12 gauge).
I have been at this almost a year now, and I have to tell you that I'm just about "over it". My short-term memory is shot, and so is my patience. If it happens, it happens, but as far as I'm concerned it's gonna be an anti-climax if it does.
Do I sound cynical? You're right, I have become that way.
So as things stand right now, I will continue my advocacy of animal welfare and let other things run their course.
In keeping with the theme "Comedy Tonight", this is from my friend John on the left coast, who also sent me some pics of Winter in Germany which I will post in the next blog entry.
Thursday, February 11, 2010
Two years ago, some of you may remember, I rode my bicycle 800 miles from Dallas TX back to Dallas, GA to support my (then) local humane society and the national Humane Society's "Spay, Neuter and Adopt" educational project.
Well, I'm doing it again this year, in September, this time from Carrollton TX back here to Carrollton, GA (again about 800 miles).
Y'all, I'm slowly going crazy (ier) just sitting here stagnating, and I have GOT to do something useful, and, as I can still pedal my bicycle, I'm going to do that. For the animals.
Anyone who knows me, knows I am passionate about animal welfare, and since this could very well be the last time I can do this, I WANT to do it very badly, so I will.
We'll be launching a website for The Carrollton To Carrollton Ride To Care soon. I'll let y'all know......
Click on the title link for a very heart-warming story about an animal rescue. Awwwwww's allowed and encouraged.
Wednesday, February 10, 2010
I was being as honest as possible when I told him I didn't know, because the short term memory loss is still a major problem, so if they were supposed to HELP that, then no.
He had written the refills scrips for both meds, and then proceeded to tear them up.
When I asked "what's going to happen if I suddenly stop taking them because I don't have refills he simply said, "I don't know", which to me meant "I don't care!"
So fuck it, let's have some laughs.
This is from the 80's, and is no longer really PC, but still funny as hell. Enjoy!
Monday, February 8, 2010
I don't take offense at this, because for the most part, I agree with them.
What I do (or did) have, is a knack for having ideas and problem-solving.
I accomplish this by looking at what needs to be done and then methodically applying the solution (s) until there's no longer a problem.
Granted, I have never been good at doing this at a "split-second's" notice, but given enough time to do some research/detective work, I can usually come through.
Lately, though, I have noticed a kind of "barrier", which is slowing me down a little.
For example, last night D and I were talking about washing clothes and she was telling me about a new type of fabric softener "bar" (not sheet or liquid) which attaches to the side of the tub, and softens the clothes that way.
For some reason ("reason", get it?) my mind locked onto the word "tub", and I kept "seeing" a bathtub, and that wasn't making any sense to me, so I said as much.
D explained that the thing which goes round and round in the dryer is also called a tub, and then the penny dropped.
I knew that.
I once knew that, just like the washing machine thing is called a tub.
Met an old classmate of mine in the drugstore the other day and we discussed his Dad's Alzheimer's and he told me some of the things he'd had to help him with, memory-wise.
That got me to thinking about the tv remote control.
We've all misplaced it, right?
So what would be a possible solution to never losing it again?
When called away for whatever reason, always put the damn thing in the same place, right?
But what if you forget where that "same place" is?
That's an example of what my day is like and I use this when people tell me, "Well I do that!"
Sometimes it helps, other times I just get that vacant stare.
Dimebon----- Click on the title of this blog entry to read about the newest hope for Alzheimer's Related Dementia. Don't we all wish we lived in Europe? They seem to have it all over us when it comes to marketing a drug that just might help to arrest the disease if not cure it completely.
"In the next decade".
Health Care Reform? "In the next decade".
As I wrote in the alzheimer's.org forum, I think our country's government is being flown by the seats of our leaders' pants.
I don't think they have a clue, and what's happening is we're running around placing buckets where the rain gets in, but not fixing the roof.
Do you know about "ambient music"? A short definition is that it's music you can choose to listen to, or not. It's just there. This piece, "Music for Airports", is a great introduction to ambient music, and it's a cd I play to relax with.
Thursday, February 4, 2010
Now, due to Becks and her Bill (in Scotland) I am once again able to publish, and in the next few days will catch you up on all things "Bud".
In an earlier post (now in the archives), I started writing some of my memoirs (growing up in Germany, etc) and I plan on continuing this now that the blog is up and running again.
While you wait (not long, promise), here's a little bit of musical "Bill Memorabilia": A resurrected tape of the first band I was ever in called The Watchmen. This tape is 46 years old and was in surprisingly good shape when we listened back to it after uploading it to YouTube.
If you decide to listen, keep several things in mind:
1. It's a raw , live performance with mistakes
2. There will be places where there's a bad splice and where the music seems to drop out
3. The music isn't balanced. Meaning you might hear a very strong bass line at times.
4. It was recorded in an old radio station's "preacher's pit".
You can listen to all three parts by clicking on "More from TheWatchmen1965" and choosing part 2 and 3.....
Please remember to click and feed.