Posts

Mr. Craig Goes To Washington

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A couple of entries ago, I wrote I was being considered by the Georgia Alzheimer's Association for a scholarship to the Alzheimer's Advocacy Forum to be held in Washington, D.C. May 15th-17th: "The National Public Policy Office in Washington, D.C., has awarded you an $800.00 Scholarship and Complimentary Registration valued at $175.00, for the Advocacy Forum May 15-17, in Washington, DC. The Chapter also commits to provide an additional scholarship to bring your scholarship total up to a maximum of $1100." I spoke on the phone with my counsellors Kathy and Suzette who gave me the good news Monday morning, and I wasn't able to wipe the smile off my face all day! To learn more about the forum and what will be discussed, just click on the title above and the link will take you to the forum web site. The major purpose of the forum will be to educate 15 new congresspersons regarding Alzheimer's Related Dementia and the continued need of their support. In addition t...

Great News!!!!

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Today, I received a letter from SSDI telling me that a favorable decision was returned from the administrative law judge who heard my appeal on February 2nd. After almost 3 years of living from paycheck to paycheck, my wife working because I could not and living like nomads, this whole nightmare is finally over. Well, almost. I have to fill out some paperwork at Social Security which will determine how much I'll get a month and how much is owed me retroactively, but the worst is behind us. My thanks to Becky and Bill, Lisa, Margaret and everyone who visits the blog (well, all except one and he knows who I'm talking about) as well as all my Doper friends for hanging with me throughout this whole thing. It has just about worn me out, going to Doctors' appointments, being tested and being worried about D's health as she worked and I'm glad that I am finally getting the money I've paid in all my working life. Thanks Bill

(My) Life Expectancy As It Relates To Dementia

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This is a subject which has occupied my life of late: ever since I found out I have Alzheimer's related dementia. As you can see from the link (just click on the title line above to read), no one really knows for sure, do they. Some stats say 4.1 for males and 4.5 for females, depending on life style and prior history of head injuries. In my case, I have no idea what my life expectancy may be, but you may rest assured I am keeping a close eye on my symptoms and maintaining as active a lifestyle as I can. If it can be considered "a good thing", barring an accident or a cancer, I have at least some idea of when I may die, so this gives me more than an average ability to be proactive and hope for a cure. As I mentioned, I do have a fear of dying, but before I began my skydiving, I also had a fear of heights (I once jokingly said that I can't even stand to be this tall), so I am hoping that as time goes by, I will become more accepting and life my life as if I were to d...

Alzheimer's Advocacy Forum 2011

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I have been given a great opportunity and honor from my local Alzheimer's Association and my counsellors Suzette and Kathy, and I wanted to tell y'all about it. It is a chance to be granted a scholarship to attend the Public Policy Forum/Advocacy Action Summit which will be May 15-17 2011 in Washington, DC. It will be a time to become educated about the issues, learn new skills, network with fellow advocates and take our message directly to members of Congress to fight for our legislative agenda and I am honored to have been chosen to have my name submitted for this event. If I am chosen to receive the scholarship, I plan not only to participate in all of the above events, but to serve as a "reporter" and write about what I see and experience there. This will also allow me to put to use my journalistic skills which have been "moth-balled" of late. Quoting from Karen Kauffman's* article, 2010 was a year of optimism for those of us in Alzheimer's Advo...

Just Music Today

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Nothing to talk about, so I thought I would share with you one of my favorite groups of all time: Goose Creek Symphony. Hope you enjoy the music....... No charge for the music, but won't you please click to feed the 4-footers? Thanks!