Tuesday, February 16, 2010

"Compassionate Allowances" for EOAD And Other Dementias/Diseases

Click on the title link to read more about this.

A couple of weeks ago, Suzette and Becks and now a friend of mine from SDMB, Oakminster, have sent me this link, and I have not mentioned it here until now for a number of reasons.

Pretty much everyone who's been kind enough to send me this link has advised me to get in touch with my attorneys and tell them of it to see if they can expedite the approval of my SSDI.

As I have mentioned before, I am represented by Binder&Binder, and as y'all may know, they don't get paid until I get approved, and although I have been told by them that if Social Security approves me without their help, they'll gladly "drop out", I can't imagine them contacting SS on my behalf and asking them to give me this approval without them being more "involved" in the appeals process. (Read that as they want that 25% which they'll get off the top of any back pay SSDI gives me, and it isn't to their advantage if I get approved without their involvement).

There is also the fact that I am to have NO contact with Social Security on my own. That is stipulated in the contract and I have already screwed that up twice and pissed them off. That means if they call ME, I refer them to B&B. If they send me anything to fill out, I am to do so and then send it to B&B.

Can I fire B&B? Nope. Not unless I want to pay them for any work they've already done, which, of course I cannot afford.

Also keep in mind that I have dementia which is called "Alzheimer's-related", and I'm in every one of those 10 signs listed on the www.alz.org website. My shrink says I'm "impaired", which to me means I can no longer take care of my patients, so where does that leave me? Yes, I can still "reason", and fortunately my depression hasn't been so bad that I want to do away with myself (one of my friends from my radio days had a grandmother who, when she found out she had Alzheimer's, blew her brains out with a 12 gauge).

I have been at this almost a year now, and I have to tell you that I'm just about "over it". My short-term memory is shot, and so is my patience. If it happens, it happens, but as far as I'm concerned it's gonna be an anti-climax if it does.

Do I sound cynical? You're right, I have become that way.

So as things stand right now, I will continue my advocacy of animal welfare and let other things run their course.

In keeping with the theme "Comedy Tonight", this is from my friend John on the left coast, who also sent me some pics of Winter in Germany which I will post in the next blog entry.

The Animal Rescue Site



Thursday, February 11, 2010


Okay, I alluded to this in a previous entry, but since we've now had two organizational meetings, I'll let the cat out of the bag (so to speak) officially.

Two years ago, some of you may remember, I rode my bicycle 800 miles from Dallas TX back to Dallas, GA to support my (then) local humane society and the national Humane Society's "Spay, Neuter and Adopt" educational project.

Well, I'm doing it again this year, in September, this time from Carrollton TX back here to Carrollton, GA (again about 800 miles).

Y'all, I'm slowly going crazy (ier) just sitting here stagnating, and I have GOT to do something useful, and, as I can still pedal my bicycle, I'm going to do that. For the animals.

Anyone who knows me, knows I am passionate about animal welfare, and since this could very well be the last time I can do this, I WANT to do it very badly, so I will.

We'll be launching a website for The Carrollton To Carrollton Ride To Care soon. I'll let y'all know......

Click on the title link for a very heart-warming story about an animal rescue. Awwwwww's allowed and encouraged.



The Animal Rescue Site

Wednesday, February 10, 2010

How About A Little Comedy Tonight?

Had a bad day with the shrink today. For some reason he decided to turn hostile when I couldn't answer some questions as to whether I thought the Namenda (or the recently added Aricept) were helping me.

I was being as honest as possible when I told him I didn't know, because the short term memory loss is still a major problem, so if they were supposed to HELP that, then no.

He had written the refills scrips for both meds, and then proceeded to tear them up.

When I asked "what's going to happen if I suddenly stop taking them because I don't have refills he simply said, "I don't know", which to me meant "I don't care!"

So fuck it, let's have some laughs.

This is from the 80's, and is no longer really PC, but still funny as hell. Enjoy!

The Animal Rescue Site



Monday, February 8, 2010

There's More Than ONE Kind of Tub, Bill!

People have always told me I have no "common sense".

I don't take offense at this, because for the most part, I agree with them.

What I do (or did) have, is a knack for having ideas and problem-solving.

I accomplish this by looking at what needs to be done and then methodically applying the solution (s) until there's no longer a problem.

Granted, I have never been good at doing this at a "split-second's" notice, but given enough time to do some research/detective work, I can usually come through.

Lately, though, I have noticed a kind of "barrier", which is slowing me down a little.

For example, last night D and I were talking about washing clothes and she was telling me about a new type of fabric softener "bar" (not sheet or liquid) which attaches to the side of the tub, and softens the clothes that way.

For some reason ("reason", get it?) my mind locked onto the word "tub", and I kept "seeing" a bathtub, and that wasn't making any sense to me, so I said as much.

D explained that the thing which goes round and round in the dryer is also called a tub, and then the penny dropped.

I knew that.

I once knew that, just like the washing machine thing is called a tub.

Met an old classmate of mine in the drugstore the other day and we discussed his Dad's Alzheimer's and he told me some of the things he'd had to help him with, memory-wise.

That got me to thinking about the tv remote control.

We've all misplaced it, right?

So what would be a possible solution to never losing it again?

When called away for whatever reason, always put the damn thing in the same place, right?

But what if you forget where that "same place" is?

That's an example of what my day is like and I use this when people tell me, "Well I do that!"

Sometimes it helps, other times I just get that vacant stare.

Dimebon----- Click on the title of this blog entry to read about the newest hope for Alzheimer's Related Dementia. Don't we all wish we lived in Europe? They seem to have it all over us when it comes to marketing a drug that just might help to arrest the disease if not cure it completely.

"In the next decade".

Health Care Reform? "In the next decade".

As I wrote in the alzheimer's.org forum, I think our country's government is being flown by the seats of our leaders' pants.

I don't think they have a clue, and what's happening is we're running around placing buckets where the rain gets in, but not fixing the roof.

Do you know about "ambient music"? A short definition is that it's music you can choose to listen to, or not. It's just there. This piece, "Music for Airports", is a great introduction to ambient music, and it's a cd I play to relax with.

The Animal Rescue Site



Thursday, February 4, 2010

Lotsa Catching Up To Do

For about two months now, due to some mistakes I made here with passwords and usernames and such, I have been unable to blog and communicate with y'all.

Now, due to Becks and her Bill (in Scotland) I am once again able to publish, and in the next few days will catch you up on all things "Bud".

In an earlier post (now in the archives), I started writing some of my memoirs (growing up in Germany, etc) and I plan on continuing this now that the blog is up and running again.

While you wait (not long, promise), here's a little bit of musical "Bill Memorabilia": A resurrected tape of the first band I was ever in called The Watchmen. This tape is 46 years old and was in surprisingly good shape when we listened back to it after uploading it to YouTube.

If you decide to listen, keep several things in mind:

1. It's a raw , live performance with mistakes

2. There will be places where there's a bad splice and where the music seems to drop out

3. The music isn't balanced. Meaning you might hear a very strong bass line at times.

4. It was recorded in an old radio station's "preacher's pit".

You can listen to all three parts by clicking on "More from TheWatchmen1965" and choosing part 2 and 3.....

The Animal Rescue Site

Please remember to click and feed.




Ol' Blue Eyes is back!!!!!!!

Thanks, to my friend in Scotland, Bill and my friend Becks, for all your headaches and patience in dealing with me!

Back soon!


Finally able to edit blog again

Hi all

Posting here on behalf of Bill.

Now write down your password and keep it in a safe place :-)